OHbaby! Forums : Physical disabilities https://www.ohbaby.co.nz/forum/ Copyright (c) 2006-2013 Web Wiz Forums - All Rights Reserved. Sat, 04 Apr 2026 20:07:15 +0000 Mon, 20 Sep 2010 19:54:15 +0000 http://blogs.law.harvard.edu/tech/rss Web Wiz Forums 12.04 360 https://www.ohbaby.co.nz/forum/RSS_post_feed.asp?TID=35816 <![CDATA[OHbaby! Forums]]> https://www.ohbaby.co.nz/forum/forum_images/web_wiz_forums.png https://www.ohbaby.co.nz/forum/ <![CDATA[Physical disabilities : Yay I&#039;m glad that ya like...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1157420&title=physical-disabilities#1157420 Author: kebakat
Subject: 35816
Posted: 20 September 2010 at 7:54pm

Yay I'm glad that ya like that forum ]]> Mon, 20 Sep 2010 19:54:15 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1157420&title=physical-disabilities#1157420 <![CDATA[Physical disabilities : You guys are legends, Aimee. xxxx...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1157405&title=physical-disabilities#1157405 Author: fattartsrock
Subject: 35816
Posted: 20 September 2010 at 7:48pm

You guys are legends, Aimee. xxxx]]> Mon, 20 Sep 2010 19:48:20 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1157405&title=physical-disabilities#1157405 <![CDATA[Physical disabilities : Big hugs Aimee, I think of you...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156968&title=physical-disabilities#1156968 Author: LittleBug
Subject: 35816
Posted: 20 September 2010 at 12:35pm

Big hugs Aimee, I think of you often too! I think you are such an amazing champion of a mummy ]]> Mon, 20 Sep 2010 12:35:16 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156968&title=physical-disabilities#1156968 <![CDATA[Physical disabilities : Thanks guys :) Stacey messaged...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156607&title=physical-disabilities#1156607 Author: aimeejoy
Subject: 35816
Posted: 19 September 2010 at 8:15pm

Thanks guys :) Stacey messaged me with a fantastic and active forum about spinal cord injury, which should help.]]> Sun, 19 Sep 2010 20:15:24 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156607&title=physical-disabilities#1156607 <![CDATA[Physical disabilities : I am sorry, I have no real advice...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156575&title=physical-disabilities#1156575 Author: myfullhouse
Subject: 35816
Posted: 19 September 2010 at 7:36pm

I am sorry, I have no real advice as I haven't experienced anything like this, but hugs to you as it is obviously very tiring.
On the 'telling everyone it is fine' front though I do have some experience in that I have PND and went undiagnosed for a long time as I kept telling everyone that I was fine when I wasn't. My advice would be to tell the truth when people ask, even if they don't want to hear the real answer as one day someone will and they will help you in whatever way they can. I found it alot better when I started telling people what days were hard or alternatively when we had a good day. My family started offering more support because they now know I need it.

Do you have anything like ParentPort in your area? They might be able to give you a hand occasionally to take the pressure off

Edited by Linzy]]> Sun, 19 Sep 2010 19:36:28 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156575&title=physical-disabilities#1156575 <![CDATA[Physical disabilities : Aimee-we think of you often too.....]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156555&title=physical-disabilities#1156555 Author: ElfsMum
Subject: 35816
Posted: 19 September 2010 at 6:52pm

Aimee-we think of you often too.. i dont have a child with a physical disability but my brother has a very rare (as in none in the world atm) physical disability and has recently had to go to a rest home as there is nowhere suitable to care for him:( so i do have some experience on the matter..and I also used to look after some disabled children (though mostly intellectual as well) ...... ]]> Sun, 19 Sep 2010 18:52:00 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156555&title=physical-disabilities#1156555 <![CDATA[Physical disabilities : Aimee I am the same as Liz with...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156551&title=physical-disabilities#1156551 Author: mummy_becks
Subject: 35816
Posted: 19 September 2010 at 6:47pm

Aimee I am the same as Liz with no advice, but we all think of you alot. I will ahve some veges for you this year that you are more than welcome too again.

]]> Sun, 19 Sep 2010 18:47:18 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156551&title=physical-disabilities#1156551 <![CDATA[Physical disabilities : Aimee - I have no advice ever,...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156499&title=physical-disabilities#1156499 Author: lizzle
Subject: 35816
Posted: 19 September 2010 at 5:01pm

Aimee - I have no advice ever, but just wanted to say that we(everyone in my house) thinks of you all the time. Hugs from us.]]> Sun, 19 Sep 2010 17:01:23 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156499&title=physical-disabilities#1156499 <![CDATA[Physical disabilities : Hey everyone, haven&#039;t been...]]> https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156420&title=physical-disabilities#1156420 Author: aimeejoy
Subject: 35816
Posted: 19 September 2010 at 2:24pm

Hey everyone, haven't been on here for ages, but still been lurking around!

Just wondering if there is anyone of you out there with a child with only physical difficulties?

For those that don't know my now 2.5 year old was diagnosed with a tumour inside her spinal cord at neck level, and after 5 operations on it (last scan six months ago looked good, waiting for next scan in a few weeks) she is now a C2 incomplete tetraplegic/quadriplegic.

She can walk a little with a walking frame, but can't stand unassisted. She crawls well and can pull to stand, but has limited hand function - right hand has no finger movement so she can only use it a little and right hand is very weak. We are unsure if she has full bladder and bowel sensation as toilet training is very hit and miss. Also in her arms she has no pain sensation and limited hot/cold sensation and she uses her face a lot to feel things.

After 18 months of chemo, operations and seemingly continuous illnesses, hospital stays, feeding tube until last month and many complications, things are going well now and she is such a happy, determined and amazing little girl. And although she is fairly independent she needs a lot of help with everyday things normal two year olds can do - dressing, eating, toileting, playing, she can't turn pages in a book and trying to play outside is hard work....

I guess now that we've been home for a few months it's starting to take its toll and I am sick of saying everything is fine when people ask - its not, its bloody hard work and I am tired! And my poor husband is bearing the brunt of my random moods and general anger at the world - whether that is from how things are now, or still getting over what we've been through I'm not sure. Don't know if thats what people want to hear though! :) Anyway after that long ramble, I would love to hear how others are getting on.

Edited by aimeejoy]]> Sun, 19 Sep 2010 14:24:28 +0000 https://www.ohbaby.co.nz/forum/forum_posts.asp?TID=35816&PID=1156420&title=physical-disabilities#1156420